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We Are Rare Gems

Find Strength In Your Battle Against Rare Diseases.

 

A Vibrant Community Forged in the Fight Against Rare Diseases.

Overcome Anxiety. Re-build Strength. Regain Confidence. 

Image by Heather Ford

Top 10 Tips to Find Strength in the Struggle.

You can't always control what happens to you. But you can always control how you respond to it. 

 

The Story

Mony B. was diagnosed with Idiopathic Intracranial Hypertension (IIH), otherwise known as Pseudo-Tumor Cerebri. This condition effects only 1 out of 100,000.

She is now committed to building a community of "gems" who also experience rare diseases, to help them find strength in the struggle, power in their pain, and overcome the fear, anxiety, uncertainty, and hopelessness in order to use their condition as a force for good. 

Gems are formed through fire, heat, and pressure, and these challenging conditions are precisely what makes them so rare and valuable. 

 

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Join Our 

Community of Gems

Let's Find Power In The Pain!

 

Welcome Home, You Gem!

About Me

Image by ian dooley

I'm Mony B. I was was diagnosed with Idiopathic Intracranial Hypertension (IIH), otherwise known as Pseudo-Tumor Cerebri. This condition effects only 1 out of 100,000. I am now committed to building a community of “gems”, forged in the fight against rare diseases.  Join this vibrant community and turn your battle into a force for good. 

Join Our Community!

Welcome to the Community! 

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